Hear Their Voices: World Hemophilia Day 2017

Hear Their Voices: World Hemophilia Day 2017

By Vanessa Herrick

World Hemophilia Day is a special opportunity for our community to come together and support those with inherited bleeding disorders.

World Hemophilia Day is a special opportunity for our community to come together and support those with inherited bleeding disorders. This year, thousands of people around the world came out to show support for women and girls with bleeding disorders. Over 70 landmarks were part of the “Light it up Red” campaign this year, in cities all over the world. Many people took part in the campaign by photographing lit-up landmarks, and posting the photos on the WFH Facebook page and Twitter timeline. Even better, people left a number of heartfelt comments on our social media pages telling us how much the big day meant to them. All-in-all, World Hemophilia Day 2017 was a resounding success.

World Hemophilia Day is important because it brings attention to the bleeding disorders community. This year, that attention is focused on women and girls with bleeding disorders who often face insufficient knowledge in medical care teams, delayed diagnosis, and a lack of access to care.

Did you know that…

  • von Willebrand disease (VWD) is the most common type of bleeding disorder and the most common bleeding disorder affecting women
  • Factor XI deficiency occurs equally in both sexes, and differs from hemophilia A (factor VIII) or hemophilia B (factor IX) in that there is no bleeding into joints and muscles
  • The average time it takes a woman in the U.S. to be diagnosed with a bleeding disorder from the time she begins to seek medical care is often around 16 years*

If you missed World Hemophilia Day, you can visit the WFH World Hemophilia Day page, or the World Hemophilia Day website. You can also learn more about women and bleeding disorders on the WFH eLearning platform.

The WFH would like to thank our 2017 World Hemophilia Day sponsors for their continued support: Bayer, BioMarin, Biotest, Bioverativ, CSL Behring, F. Hoffman La-Roche, Green Cross, Grifols, Kedrion, LFB, Novo Nordisk, Octapharma, Pfizer, Precision Biologic, Shire, Sobi, and uniQure.

*Data sources: the WFH and The Centers for Disease Control and Prevention (CDC), 2003. www.cdc.gov/ncbddd/vwd/data.html)